April 16, 2021: 4p-/Wolf-Hirschhorn Syndrome Awareness Day

WHEREAS, the good health and general well-being of the people of Michigan are strengthened by our awareness and understanding of a rare genetic disorder known as 4p- syndrome, or Wolf-Hirschhorn syndrome; and,

WHERES, 4p- syndrome is caused by a missing piece of genetic material on chromosome 4 that typically results in characteristic facial features, seizures, and various physical disabilities; and,

WHEREAS, children with 4p- syndrome are usually born with low birth weight and develop slowly, both cognitively and physically, compared to their same-age peers, and experience medical complications while maintaining strong social skills; and,

WHEREAS, dedicated professionals are presently involved in valuable research to explore new therapies and diagnostic tools and to offer hope to persons with 4p- syndrome; and,

WHEREAS, it is estimated that approximately 1 in 50,000 babies are born with 4p- syndrome, although it is believed that many remain undiagnosed; and,

WHEREAS, it is incumbent upon the citizens of Michigan to work together as a people and a state to increase research into understanding the syndrome, to support improved detection through appropriate testing, to promote the development of improved therapies for early intervention and other necessary and critical treatments, as well as join in recognizing and applauding the valuable role which families and advocates of those who have 4p- syndrome play in helping our medical community to advance the knowledge and awareness of this syndrome; and,

WHEREAS, the State of Michigan is pleased to join people throughout our nation in promoting a special celebration which seeks to raise awareness of 4p- syndrome, designed to have a positive and productive impact on the lives of all people with 4p- syndrome and their caregivers;

NOW, THEREFORE, I, Gretchen Whitmer, governor of Michigan, do hereby proclaim April 16, 2021 as 4p-/Wolf-Hirschhorn Syndrome Awareness Day in Michigan.