August 22, 2021: SATB2-Associated Syndrome (SAS) Awareness Day

WHEREAS, SATB2-associated syndrome (SAS) is a rare genetic condition caused by a change in the SATB2 gene on chromosome 2 involved in the development of the brain and structures in the head and face; and,

 

WHEREAS, SAS is a relatively recently described condition with more than 200 confirmed cases worldwide; and,

 

WHEREAS, individuals with SAS often experience medical and developmental concerns, including significant intellectual disabilities, limited or absent speech, behavioral issues, abnormalities of the teeth and palate, and brain and bone anomalies; and,

 

WHEREAS, there is limited awareness of SAS among the public and medical community, with the burden to increase awareness primarily falling on the shoulders of those impacted by SAS either indirectly or directly; and,

 

WHEREAS, the non-profit, SATB2 Gene Foundation, is dedicated to increasing awareness and education of SAS as well as supporting research efforts to benefit individuals with SAS and their families and support systems;

 

NOW, THEREFORE, I, Gretchen Whitmer, governor of Michigan, do hereby proclaim, August 22, 2021, as SATB2-Associated Syndrome (SAS) Awareness Day in Michigan.