Sudden cardiac death claims the lives of more than 300 Michigan children and young adults between the ages of 1-39 years annually. These deaths are a tremendous loss not only for families, but for entire communities. Even more disheartening is that many of these deaths could be prevented through screening, detection, and treatment. SCDY victims are too young to die-and every life lost is one too many. Therefore, working together with a motivated group of experts and advocates, the Michigan Department of Health and Human Services (MDHHS) Genomics Program initiated a surveillance system to further assess the impact of SCDY and identify action steps for prevention.
- MI HEARTSafe Schools
- Radio announcement: Michigan Student Athlete Cardiac Awareness Month - April, 2019 03-18-19 (audio)
- Too Young to Die - An Update on the Impact of Sudden Cardiac Death of the Young in Michigan 1999 - 2011 06/19/12
- MHSAA Benchmarks (04-27-12)
- MHSAA Student-Athlete Physical Exam - Medical History Form (05/10/11)
- Detroit Free Press: Heart problems are a silent killer of children (10/13/10)
- Detroit Free Press: Doctors look to change how they get student info (10/13/10)
- SCDY Report: Too Young to Die- Impact of Sudden Cardiac Death of the Young in Michigan, 1999-2008
April 17, 2013
Congratulations to the Kimberly Anne Gillary Foundation (Troy), Wes Leonard Heart Team (Fennville), and KAYLA Foundation (Ypsilanti) for being honored as 2013 Hometown Health Heroes during Michigan Public Health Week. They've assisted schools by donating automated external defibrillators (AEDs), providing AED training, and promoting CPR/AED drills to prevent deaths due to sudden cardiac arrest. To date, over 600 schools have received AEDs and training.
Multiple data sources are used to gather information about the burden, impact and causes of SCDY in Michigan. View the epidemiology overview, or summaries of what has been found from these data sources.
- SCDY: Epidemiology Presentation
Beth Anderson, MPH, Genomics Epidemiologist
Division of Genomics, Perinatal Health and Chronic Disease Epidemiology
- SCDY Mortality Data based on death certificate reporting
- Michigan Behavioral Risk Factor Survey (MiBRFS) is a population-based telephone survey that was used to estimate how many Michigan residents have a family history of SCDY. Family history is the greatest risk factor for SCDY. View MIBRFS SCDY Family History Data
- Mortality Case Reviews were conducted between 2006-2008. A multidisciplinary panel of experts conducted a detailed review of autopsy reports, medical records and information from next-of-kin interviews.
Data to Action
After reviewing de-identified case summaries, the expert panel recommended patient-, provider-, and system-level changes to prevent future deaths. MDCH staff continues to work with multiple partners including academia, health care delivery systems, industry, communities, and families to accomplish these changes. More than 25 action steps have been identified and grouped into five areas: pre-participation sports screening; provider education and public awareness; public awareness of cardiac symptoms and CPR/AED training; emergency response protocols; and medical examiner protocols.
Provider Education and Public Awareness
Identifying Genetic Risk in Surviving Family Members
SCDY: Recognition, Screening and Evaluation
Identification and Treatment of Sudden Death Conditions in Young Patients
Public Awareness of Cardiac Symptoms
Medical Examiner Protocols
SCDY: The Forensic Pathologist's Perspective
American Heart Association, Midwest Affiliate
MDHHS Cardiovascular Health, Nutrition and Physical Activity
The Kimberly Anne Gillary Foundation
Thomas Smith Memorial Foundation
The KAYLA Foundation
U-M, C.S. Mott Children's Hospital Sudden Cardiac Arrest Program
Wes Leonard Heart Team
Adult Congenital Heart Association
Cardiovascular Screening of Adolescent Athletes
Heart Rhythm Foundation
Heart Rhythm Society
Hypertrophic Cardiomyopathy Association
Mended Hearts, Inc.
NHLBI Working Group- Screening for Sudden Cardiac Death
Parent Heart Watch
Recommendations Related to Preparticipation Screening for Cardiovascular Abnormalities: 2007 Update
Screening for SCDY: Report from a NHLBI Working Group
Sudden Cardiac Arrest Association
Sudden Cardiac Arrest Foundation
Surviving Sudden Cardiac Arrest
For more information about SCDY or to become involved with prevention of SCDY in Michigan, please call 1- 866-852-1247 or email firstname.lastname@example.org
Michigan's SCDY Surveillance Project was supported in part by a cooperative agreement from the Centers for Disease Control and Prevention, National Office of Public Health Genomics, 2004-09.