About the Project
Statewide Learning Collaborative
Clinic teams participate in webinars and meetings to share best practices, learn about innovative strategies, and identify where improvements can be made in their practices. Together the clinic teams will work on improving care coordination, epilepsy (seizure) action plans, transition planning for youth, using technology to increase access to care, and comprehensive epilepsy education.
Families are involved at all levels of the project:
- A parent consultant is part of the Project Advisory Group and Leadership Team and provides first-hand perspective as a parent of a child with epilepsy
- Each clinic team includes a parent representative who participates in trainings, meetings, and project planning
- Parent Mentoring is offered through the Family Center to support and connect parents with similar experiences
- Feedback is gathered from families at trainings and through surveys
Outreach and Education
The Epilepsy Foundation of Michigan is the project's lead outreach and education partner and often works with the Parent Consultant or other project staff on these activities. Trainings and outreach activities are customized for audiences such as school staff, health care personnel, first responders, families, and the general public.
Michigan's Children's Special Health Care Services (CSHCS) partners with the following organizations: Family Center for Childen and Youth with Special Health Care Needs (CYSHCN), Epilepsy Foundation of Michigan, the Michigan Chapter of the American Academy of Pediatrics, Michigan Public Health Institute, Alcona Health Center (Alpena, Cheboygan, Harbor Springs), Beaumont Children's, Children's Hospital of Michigan, DeVos Children's Hospital, Michigan State University Child Health Care Clinic, the University of Michigan Child Health Evaluation and Research (CHEAR) Unit, and UP Health System Marquette.
Using technologies like telemedicine and smart phone applicaitions, the project will increase access to specialty care and help children and youth with epilepsy better manage their epilepsy.