October, 2014: Rett Syndrome Awareness Month

WHEREAS, Rett syndrome is a genetic neurological disorder that occurs almost exclusively in females; and,

WHEREAS, Every 2 hours a girl is born with Rett syndrome, but its symptoms usually do not appear until 6 to 18 months; and,

WHEREAS, A regression period leads to lifelong impairments with multiple dysfunctions: speech is lost, seizures can develop and scoliosis occurs, many develop irregular breathing patterns, and more than half of the girls and women lose their ability to walk. The hallmark sign of Rett syndrome is near constant repetitive hand movements while awake; and,

WHEREAS, Those diagnosed with Rett syndrome require maximum assistance with daily living activities; and,

WHEREAS, The disorder is not degenerative and biomedical research is proving that neurological symptoms could be reversed even after decades of severe symptoms, and,

WHEREAS, IRSF is the world’s largest private source of funds for Rett syndrome research addressing the full spectrum of this developmental disorder while advocating to improve the quality of life for the patients and their families; and,

WHEREAS, We must continue our efforts in bringing awareness to the medical community, therapists, teachers, caregivers, and the general public as well. We must have funding available for researchers who are dedicated in finding a cure for Rett syndrome. We support this shared mission now more than ever, and together, progress will continue until there is a world without Rett.

NOW, THEREFORE, I, Rick Snyder, governor of Michigan, do hereby proclaim October 2014 as Rett Syndrome Awareness Month in Michigan.